Fun Photos

I’ve decided that I just can’t talk too much about Kyle’s chest issue because it’s entirely too depressing for me. To make it short, it’s inoperable and we have to wait and see how it progresses until he turns 7. We are going to have a CT Scan done at the request of his Dr with Children’s Hospital.

So, let’s see some photos of how far Kyle has come…. First up, WALKING!!! It’s been two months since he took his first step without the walker. It’s still slow going, but he can usually take around 6-10steps now without having to “touchdown”, and start again. He’s also walking sideways and learning to maneuver uneven surfaces.

And here’s a couple more just having fun being the big brother. I should note, he’s GREAT with Ian and loves him very much.

First Steps

That’s right… Kyle took his first steps today towards walking independently. He’s been cruising for 1.5 years now, and using his walker consistently for 6mo. For the past 5-6 months or so, he’s been practicing standing, and is still a little shaky – but standing. I guess he decided that he was ready to start trying to walk on his own, too. Fortunately for us, Karl was right here when it happened, so we both got to see it. Of course we cried, and cheered and gave him big kisses and high fives – I mean how could we not? It’s one of the biggest accomplishments of his life. About an hour later, he worked up the courage to take another step. So we’ll just start building on that, one step at a time.

This picture below taken a couple weeks ago. He’s clapping because he’s so proud of himself :) On the picture book below, you’ll see a boy standing in the upper left corner. We’ve found a great collection of picture books with kids doing all sorts of activities, and his desire to imitate them, has helped us better teach Kyle how to do certain things. They also help in communicating, a trick we learned from his preschool. Where he can’t say the word, he’ll point to the object or picture to allow that to speak for him. However, his speech has come a long way. He knows and identifies his entire alphabet, counts to 20, counts down from 10, identifies multiple animals – the list goes on. School has made a major impact on his education. Being around other children his age, in a learning environment, is helping Kyle overcome so many obstacles. Did I mention that he even finger paints now? He was so threatened by anything that had an odor or made him think of food. Now he plays with real food, uses spoons to take food off of my plate and pretend eat or feed us directly. It’s just incredible how well he’s doing.

In other news… Kyle had his tonsils and adenoids removed, as well as having his 3rd set of ear tubes placed – YESTERDAY. We had to stay in the hospital last night for observation, but were released and home before noon. Yesterday was pretty rough, and he was on oxygen for about 12 hours. After that, the pain meds seemed to be working better. This morning he woke up at 5am, all smiles. The tonsils were causing an obstruction, and creating difficulty in swallowing and breathing. Because of the inability to swallow, he had turned in to a water faucet with all the drool. There’s already been a big change in that area, with minimal drool today.

We’re also fearing an upcoming drs appointment with Kyle. Over the years, due to nutrition shortfalls early on, Kyle has developed Pigeon Breast (pectus carinatum). With clothes on, it’s not so obvious, but with his shirt off, you can see that his chest plate protrudes more outward, and unlike most PC cases, Kyle’s ribs push deep in to his lung cavity – almost caving under. It’s that particular problem that’s creating a serious issue in Kyle’s health as he grows. The problem has already been growing, but during his last growth spurt, Kyle’s ribs did not extend downward like they should. Instead, they curled up further in to his lungs. As time continues on, this begins seriously limiting his lung capacity and growth. Since he already has BPD, he’s at greater risk. His future will likely include a minimum of one major surgery, with additional surgeries not being ruled out. We meet with the Cardio Thoracic dr in June, and the Orthopedic surgeon next month.

Update on Ian…
The baby hasn’t been doing so good. Serious tummy troubles – and I feel like I’m to blame. I had a botched root canal last friday (being finished this coming friday), and had to go on two meds that are not compatible with breastfeeding. I only had a few days of milk in the freezer, so I had to give him formula. We noticed a big change right away. Projectile to general spit up, extreme fussiness, decrease in bowel movements, and a rock hard tummy. Signs we’re all too familiar with from what we went through with Kyle. I had to call the dr to see if I could discontinue the medicine. Since it was in my system for 48 hours, I could – but then I had to still wait 24 hours to breastfeed again. So this afternoon was the first time Ian has breastfed in nearly a week. He was so happy – but he’s still having a hard time. Today, he’s only had one nap, and just laid down for bed. I’m really hoping that the breastmilk will get his bowels moving again, and release some of the pressure and discomfort. Formula truly is horrible stuff.

On the upside… Ian has been playing under his playmat like a little pro. He whacks everything, grabs toys, and has begun bringing them to his mouth. It’s so cute. He puts his little hand in the air, steadies it, then goes crazy smashing things as quickly as he can. He also loves talking to you – agoo, ahh, and then little laughs and smiles. He’s also figured out how to click his tongue and has begun blowing bubbles. Ian also stares and smiles at Kyle, and of course Kyle just LOVES him! Here’s a picture taken a week ago:

Introducing Ian Johann Knoernschild

 

Here are my statistics:

Born February 22, 2007, 10:25 AM
7 Pounds, 11-1/4 Ounces

21 Inches Long


Mommy & Daddy on the way to the hospital.
Dad says I’m in the photo somewhere but I don’t see where.
 


Something called “The Prep Room”
 


Good to go, mom?
 


Good to go, dad!
 


Me & my mommy
 


Me & my daddy
 


The nurse just wouldn’t stop messing with me!
 


These are my “feet”. I’m not sure what they’re for yet.
 


Time for a nap.
 


My first bath.
 


Hmmmm…. no, I don’t mind this so much
 


Whatever a “lobster” is, mommy says I’m as red as one after my bath.
 


I have found that this is a really great place to fall asleep
 


What’s going on out there?
 


Watch me make faces!
 

 

 


Me & my mommy again.
 


Daddy said this was “great light”. I didn’t see what was so great about it, so I just fell asleep.
 


Me, happy
 


Me, not happy
 


Me and my Aunt Katie
 


Me, my big brother Kyle, and Grandma and Grandpa
 

Posted in Ian