Look at that beautiful smile. It’s been so long since I’ve updated, and so much is going on – that it’s hard to find the time. But let’s start out with the biggest news of all….
Tomorrow (Saturday) will mark 1 week since Kyle gave up oxygen during the day. He only uses it now to sleep, and minimally at that. I know this may only be temporary, but it’s a huge step in the right direction. I get teary-eyed just looking at him. He’s so happy now!!! We went to gymboree last Tuesday, for the first time the kids didn’t have to “be careful”. He was just another baby (cry).
I can’t tell you what it feels like to pick up my child, free of the wires and tubes and all the things that restrict our movement. I remember hearing Karl upstairs with him last Sunday, we were getting ready to leave – and he was running through the rooms and halls with him. It’s so hard to explain these things to people that may never truly understand the emotions… But I must imagine that it’s like seeing your child take his first step. This is the third biggest day of our life with him. First being the day he was born, the day we first held him (7wks old), and now this!!!
As for his development, otherwise… Things we moving forward, until his Physical Therapist cancelled all of his sessions for the next 8 weeks. To say that I have been disappointed in the lack of proper therapeutic attention that he receives is quite the understatement!!! So, I’m on the hunt for more therapists again, and keep coming up short. We do have a new speech therapist evaluation next Wednesday, so I’m VERY excited about that. Kyle’s last therapist dropped him when he went in for his g-tube, and couldn’t get him back on the schedule after that – everyone since has been booked as well – very frustrating when you have a child that is orally averse.
Gymboree is the only “therapy” he is getting, and that really only counts as developmental therapy – but it’s better than nothing. I’m hoping some spots open up after the holiday.
BTW – we’re building a new house… If you know someone in the market for a gorgeous, 1897 restored Victorian, 5br, 1.5 ba up/1ba in basement, full depth basement, and a brand new custom kitchen w/granite, etc… Let me know. Our new home will be done in Oct, current home goes on the market after the 4th holiday. Hint, Hint – LOL. More to come on this in the future.